Michael and Lisa Kelly decided some years ago that they wanted to work together and work at home so they could spend more time with their two boys, Dillon and Ryan. The Kelley's older son Dillon has "Fragile X syndrome," a disease which manifests itself as a form of mental retardation. According to the National Fragile X Foundation, Fragile X (FXS) is, "the most common cause of inherited mental impairment. This impairment can range from learning disabilities to more severe cognitive or intellectual disabilities. Symptoms also can include characteristic physical and behavioral features and delays in speech and language development." ABC News introduces you to this remarkable family coping with a child with FXS while trying to give both of their sons normal and happy lives. Anchor: Ted Koppel Airdate: 9/28/2002
R**A
ABC News Nightline Fragile X Syndrome
I bought this DVD thinking it would educate me as the cause of the condition with a view toward identyfying intervention options. The DVD focused on the story of one middle class couple of privilege. Rarely did it touch on issues that were transferable to parents with Fragile X syndrome children in general. This was a very poor investment on my part and I do not recommeded it.
J**S
a must see for FXS parents
Our son was diagnosed with Fragile X (FXS) and this video was very helpful in understanding the practical day-to-day living and personality of FXS kids. It is not scientific, nor should it be. Anyone seeking scientific or medical info should not buy a video, they should look for current medical journals online to get the most updated information. From a "real life" standpoint, this video was outstanding.
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2 weeks ago
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