Living with Lewy Body Dementia: One Caregiver's Personal, In-Depth Experience

Every single patient is different, but it is so good to know what happened to one person in this book. Some generalizations could be made as it offers some guideposts. Watching for certain behaviors helps us understand how far along the DLB person may have traveled. The reactions and stories illustrate things that could or might happen, and that we are not alone on our journeys. Recommend reading for an in-depth look at one particular case. It is the brave patient himself who reads this text.

Excelent! It really helped me to get things organized for a near future arrangements.

I am about half way through your book, and I just felt compelled to write to you. I wanted to thank you for being so candid about your experience with your husband's illness and the progression of the disease. I am caring for my mother in my home. She too was diagnosed with PD about 18 months ago. She happens to be a patient of Dr. Duker as well. She is not due to see him again until December. I think it is time to update her progression. In the last 2 to 3 months, this rapid deterioration and erratic change in her mental state has occurred. Fortunately, in a conversation with one of my father's nurses a few weeks ago, she mentioned LBD to me. No coincidence, I know. I started to research everything that I could find on LBD. Last week I happened on your book, by the grace of God, I think! I have had so many "AH HA" moments while reading your book. I feel the same as when I first attended AlAnon in search of understanding of my first husband's alcoholism. It is finally as if someone else really understands what I am living with. So much insight you share!! I read this morning about "showtime". This has occurred several times in the last couple of months when relatives have visited from out of state. They think Mom seems to be doing well, and maybe I am the one with the mental condition. I will encourage them to read your book to gain understanding of our day to day challenges, but more importantly, I have more information with which to help my mother.Many thanks!Rachel

I attended a seminar By Judy Towne a few years ago. At the time wife, had been diagnosed and later passed of Lewy body Dementia. After Judy passed I read her book page by page and discovered that each event in that book about her husband was exactly as my wife's had been. If you just inserted her name for his, the events were exactly the same; thank you Judy. You saved me writing a book. I have given a copy to several of our relatives that were interested in knowing. Judy Towne has devoted a lot of time and energy to help us better understand.

This book has been extremely helpful to me in caring for my husband who has Lewy Body Dementia. Easy read, yet comprehensive. I refer to it often.

I read a lot, and have found many resources for various life "opportunities. I am in the midst of my early diagnosis for motor/ neurological issues. I found this wonderful book, and feel that it will continue to aid me and my care_giver (s) in the future, whereve,r this illness takes me. This well_conceieved and written book will probably be shared by many in my family. Will comment more at a later date. Thank you, Judy.

The book hits confusion of diagnosis and important areas to continue to nurture brain. Strongly recommend for caregivers and friends.

This book is such a valuable and informative resource for a caregiver or family member that is having to cope with a loved one's journey with LBD. Reading the book has allowed my mum and I, a comfort and acceptance of what is happening to my dad. We highly recommend this book - it touches on so many areas of support for the caregiver.Thank you Judy!Gail and Stacey

I found this book totally relatable, and wish I had found it sooner. Puts things into perspective, makes your uncomfortable thoughts and feelings normal. We are near the end of this b*****y disease, am finding the caring harder and harder each day, support is only just now kicking in, so I am feeling not quite so alone. I am starting to read through it again. Although Judy is from Cincinnati, USA, the same or similar services are here. Except she doesn’t mention Community Mental Health Support that is here and is marvelous, when you can get it. LBD doesn’t play like other dementias, so in hospital settings and others they don’t understand the disease your loved one is dealing with. I found this book so helpful, and inspirational, we can get through this journey, and all it’s different stages. Thank you Judy for sharing your story, I am sure you have helped so many.

A positive view on tackling this devastating illness. It is full of useful information and advice. Not an easy read for someone at the beginning of this journey. Plus the writer is made of strong stuff, wonder if she ever had moments of self doubt and anger like the rest of us humans. It is a realistic account of how she tackled the practicalities, I have not finished it yet , not because I am burying my head in the sand but because the beginning is relevant to me, the middle useful for mental preparation, I am saving the end for when it's more relevant and I have no choice but to face it.

This is an excellent book. Full of practical advice. Although it is based on the system in the USA the services are transferable to the UK. The most important thing is that as a wife of someone with LBD it made me feel less alone and brought me some peace about my own responses. I have got a better insight and can care for husband and myself much better. Thank you Judy.

The book arrived promptly in excellent condition. Judy Towne Jennings writes about the experience of caring for her husband straight from the heart, the success stories and the things that weren't so good. All areas of the condition are discussed, a good book for anyone who has just been told their loved one has LBD.

Very good book for a carer with someone who suffers with this disease